“The team have helped me to source the equipment I need and get funding for a car and wheelchair. Being able to go out on trips and holiday has improved my confidence."
Tell me more…
Until the age of 18, children and young people with life-limiting conditions and their families receive all-encompassing coordinated free paediatric healthcare and specialist support from across a wide range of statutory and non-statutory agencies, including education. Once they reach the age of 18, this degree of coordinated healthcare and educational support is no longer available and they need to obtain their own funding through personal budgets, and organise their own health and social care support, with little assistance or guidance as to where to begin. This means that the obstacles to a young person with a life-limiting condition and very complex needs are much more difficult to overcome.
The service provides a highly personal and individualised service that considers the young person’s needs, strengths and abilities and is responsive to their circumstances which can sometimes change extremely quickly. Our team advocate for young people and empowers them to have the confidence to achieve their full potential in terms of education, health, physical, psychological and social development.
Our young people are involved in every discussion about their future. The support provided ensures they are at the centre of their transition planning process and feel able to speak up when they don’t understand something or feel they are not being listened to.